On this International Myotonic Dystrophy Awareness Day, we are pleased to extend an invitation to all stakeholders in the field of myotonic dystrophy to register and actively participate in this important event.

We are pleased to invite you to download the first IDMC newsletter and share it with your colleagues and organization. In our first edition, you’ll find important information about registration, accommodation, and transportation to Saguenay for the upcoming IDMC-15 conference.

We’re officially kicking off the 1-year countdown to the 15th International Myotonic Dystrophy Consortium Meeting (IDMC-15) — a landmark global event uniting the world’s leading researchers, clinicians, and advocates dedicated to myotonic dystrophy. To mark this exciting milestone, we’re thrilled to announce that the Organizing Committee's official page is now live!

Rare Disease Day is a movement dedicated to advocating for equity in healthcare, diagnosis, and treatment in rare diseases.